2, 2012, Lexi’s parents were told that their daughter would live to see only a few more birthdays, if that. Examining Lexi’s beautiful eyes with a special microscope had revealed to the doctor the tell-tale cherry red spots of Tay-Sachs disease, confirmed when the blood work was received. The geneticist later told Gordon that she knew what Lexi’s diagnosis would be, though she waited to tell him until receiving lab results. A few weeks later, Lexi suffered a seizure that necessitated medical evacuation to Children’s Hospital in Washington, D.C. She couldn't sit up anymore and she would fall over if we pulled her up to stand,” Gordon said.Īfter yet another trip to a specialist, it was suggested that Lexi had a genetic condition that could possibly improve with a special diet. “At 15 months old, Lexi began losing the abilities she did have. And like every parent’s reaction to such a diagnosis, we were grief-stricken at the thought that our daughter was not going to have the life we envisioned for her.”ĭespite working with therapists and counselors, Lexi’s condition worsened.
We knew that would make life very challenging for her. Then stationed at Fort Belvoir, Virginia, Lexi was referred to Walter Reed Army Medical Center in Bethesda, Maryland to see a developmental specialist.
Doctors said she had not reached the typical milestones of a baby her age: Increasing mobility, hand and finger skills and some social and emotional abilities. But at her 12-month check-up, Lexi’s parents learned otherwise.
0 kommentar(er)
